21 mars 2012

behandling och beslut från Socialstyrelsen

I dag har det varit en skön dag med mycket sol och varmt. Jag kände mig mycket piggare och hade nog en liten bacill i kroppen de senaste dagarna. Idag kom vi tom ut på en mindre promenad på 2 km efter behandlingen och jag hade inga problem med flåset. Men det var skönt att komma ut. 

Kom till CSK och fick min behandling. Nr 2 med Avastin och nr 4 med Taxol. Jag kunde inte få hjälp med rehabilitering på CSK utan får själv söka det här i Arvika. Jag hade hoppats på att kunna få en specialist om rehabilitering för Avastin, cellgift och utifrån min operation. Det får jag försöka få till här på hemmaplan. Tyvärr får de inte ta del av mina journaler men det måste jag ordna på nåt sätt. De får skicka över dem. 

Eftersom gôbben är i Spanien och spelar golf hade jag hon som unner sig som chaufför idag. Vi tog en tur till Bergvik (köpcenter) för att kolla så det blev lite shopping trots stränga restriktioner om att garderoben är full.. trots nyrensning.. får inte plats. Har sagt en in.. måste minst två ut.. En baddräkt är bra för jag ser ju inte så snygg ut i bikini nuförtiden... Orkade inte prova.. så han kanske åker direkt till insamlingen.. med prislapp på.. så likt. Men kunde lura på chaufförn en kjol. Hon har troligen inte fullt i sina garderober. Där borde det va en in fem ut, är prislapp på allt. haha 

Jag fick utdrag från Socialstyrelsen idag som hade fattat beslut i min fråga om VC hade gjort rätt bedömning när de undersökte mig 11 augusti 2010. VC har ändrat sina rutiner när det gäller att påpeka behov av snabbare tider för ultraljud. Tyvärr var det kanske inte det som jag ville ha svar på utan varför de inte kopplar bukbesvär och akut viktnedgång till gynbekymmer mer ofta än vad som sker idag. Det är den tysta cancern och upptäcks alldeles för sent. Socialstyrelsen skriver att JAG kunde ha sökt gyn själv för det krävs ingen remiss.... JO MEN JAG SOM INTE HADE GYNBESVÄR SKA VA SMARTARE ÄN EN PRIMÄRDVÅRDSLÄKARE OCH KOPPLA mina magsmärtor till gyn.. härregud vad jag tycker att Socialstyrelsen håller VC om ryggen i detta fall. 

Jag vill ju att de ska ändra sin undersökning och bli mer vaksamma för att upptäcka denna sort av cancer lite tidigare. De kan inte rädda mig men kanske en annan kvinna med samma eller liknade situation... men tyvärr tycker inte Socialstyrelsen det. MAKTLÖSHETEN är ett svidande öppet sår i Sveriges sorgliga byråkratiska värld. Istället för att ta lärdom av situationer och förhindra att de sker igen tas mitt klagomål eller synpunkt som kritik.. återigen möts jag av prestige. Ingen... ingen av dem som handlagt mitt ärende har kontaktat mig personligen för att se hur vi kan ändra rutinerna... inte ens VC här i Arvika. Vem kan vara en hjälp i dessa resonemang om inte patienter som själva berätta brister som finns i vården. 






56 kommentarer:

  1. Allt klär en skönhet!!! Sänder dej en styrketanke... Kämpa på! Kram/ "syrran" Jenny W.

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    1. Söt du J.. värmer gott med lite charm! Kram

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  2. Hej!
    Följer dig på bloggen, och upphör aldrig att förvånas av din styrka och vilja. Bara riktigt vackra kvinnor klär i din friss... och du är som vanligt jättevacker! Kramar i massor. Anna Borg (Kasperowicz)

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    1. Kul att Du har hittat hit A. Det va ju ett tag sen. Hoppas du har det bra. Så snäll du är som ger mig lite positiva ord. När allt försvinner känns det tyngre än nu. Ha en skön vår Kram

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  3. Slår vad om att de som sitter på Socialstyrelsen eller VC inte haft någon nära som varit med om de situationer eller problem de bestämmer om!!! Vore det deras egna anhöriga som befunnit sig i den sitsen hade de gjort annorlunda då.....? Man skulle ju vara glad om man kunde få hjälp med att lösa svåra problem utan att behöva bekosta dyra konsulter! Som i idrottens värld tar man ju "hjälp" av de som kan mest när de avslutat sin karriär och blir tränare mm och som drabbad av någon sjukdom blir man ju specialist på sitt område och borde kunna tillföra väldigt mycket kunskap om både det ena o det andra! Synd att det ska vara så... man blir mer än sur!!! Kram Sara

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  4. Har arbetat som kontaktperson för kvinnor med äggstockscancer/gyncancer under ett par år och det är många som tyvärr fått detta svar - att man ska tänka på att söka till gyn själv. 20 år sedan jag var sjuk och ca 10 år sedan jag var kontaktperson - utvecklingne har verkligen inte gått framåt på alla håll!

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